Congresswoman Ashley Hinson (R-IA) co-sponsored the bipartisan Accelerating Access to Critical Therapies for ALS Act (ACT for ALS) introduced by Congressman Mike Quigley (D-IL-05). This legislation would create new pathways to deliver promising treatments and support the cutting-edge research needed to improve patients’ quality of life. Additionally, the ACT for ALS Act would spark investigational treatments for other rapidly progressive diseases and create a new FDA Rare Neurodegenerative Disease Grant Program to promote research and development of treatments.
“Thousands of Americans are diagnosed with ALS every year, but we have a long way to go to find a cure for this horrific disease. Despite recent groundbreaking scientific understanding and new drugs, many patients are unable to access treatments due to ineligibility or cost, leaving patients and their families with little hope in their fight against this disease. By investing in critical research and supporting pathways to a cure, this legislation takes a significant step in the fight against ALS and other neurodegenerative diseases.” -Congresswoman Ashley Hinson
